Holistic Care Hirschsprungs Disease: Patient centered care in Hirschsprung Disease (HSCR) and Total Colonic Aganglionosis (TCA)- Optimizing the pathway of care- including pre and postoperative care

27.7-29.7.2023 Rostock Warnemünde Hotel Neptun

We kindly invite you to our Summer Symposium on Holistic Care in Hirschsprungs Disease.

We are honoured to organise the first Paneuropean Scientifique Symposium on holistic care in Hirschsprung Disease and Total Colonic Agangliosis.

A Collaboration between clinicians and patient associations from Poland, UK, Italy, Netherlands, Austria and Germany will take place in Warnemünde organised by the Rostock Colorectal Center. Hirschsprung Disease (HSCR) is a rare disease affecting the capability to transport and pass stool resulting in obstruction of the bowel.

Approximately 1:5000 liveborn babies are affected. The most severe form Total Colonic Aganglionosis (TCA) affects 2-5 % of all children with HSCR.

Clinicians, researchers and patient representatives will discuss how to best enable holistic care.

During our symposium patient concerns are in the center of attention.
We will discuss excisting models of care and  aim to develop pathways for holistic care in european collaboration.

Topics include:   

1 Patient and Family needs before and after surgery

2 Patient support groups for Hirschsprung’s in Europe- ideas for cross collaboration

3 Optimal bowel management

4 Surgical Strategies in Hirschsprungs and Total Colonic Aganglionosis

5 Quality of Life Aspects, Longitudinal follow up, Continence Score

6 Transition

The Symposium will be open to everyone. We would love to involve clinicians (doctors and allied health professionals), scientist, patient associations to come together to share clinical experience and discuss how to enable best care for this patient group and their families.

Please register here

Please select from one of the following options;

for EUPSA members 10% reduction - please send member number

Account information:

Deutsche Bundesbank

IBAN: DE70 1300 0000 0013 0015 29

BIC: MARKDEF1130

Verwendungszweck: OASIS 2023 , Name
 

More information please contact us: OASIS.HolisticHirschsprungs{bei}gmail.com

This Networking event has received funding from the European Union’s Horizon 2020 research and innovation programme under the EJP RD COFUND-EJP N° 825575, Kindness for Kids: Stifung für Kinder mit seltenen Erkrankungen as well as from the DFG: Deutsche Forschungsgemeinschaft Förderung zur Durchführung internationaler wissenschaftlicher Fachtagungen.

This Event is EUPSA (European Paediatric Surgeons’ Association) approved.